A New Dawn for EB: The 2024 debra of America Benefit in LA
On Saturday, October 26, 2024, we gathered at the stunning SoFi Stadium in Los Angeles to celebrate a new dawn for Epidermolysis Bullosa (EB) at the debra of America Benefit. Taking place during EB Awareness Week, the evening was one of hope and progress, recognizing the reality of FDA-approved treatments with more breakthroughs on the horizon.
This benefit was particularly meaningful, as it was our first in Los Angeles, and many of our individuals and families affected by EB joined us to honor EB trailblazers and champion our ongoing mission to advance research and patient care.
Featured at this year’s event was the Hall of Heroes, an inspiring showcase of EB Community members captured in portraits by award-winning photographer Ari Espay at the 2024 debra Care Conference in Atlanta. Alongside these powerful images were posters from our partners, illustrating their groundbreaking research aimed at improving the lives of those with EB.
A special thank you to our generous sponsors, dedicated industry partners, and every guest who helped make this unforgettable night possible.
“So many thanks to everyone who attended the 2024 debra Benefit and helped raise much needed funds to support debra's mission,” shares Jenna Kubeck, Director of Special Events at debra of America. “It was an incredible evening gathering together sponsors, research partners, members of the EB Community, and so many new faces at our first event in Los Angeles. The immediate support we received in our new location was so encouraging, and we are looking forward to expanding our presence here in LA!”
Congratulations to our 2024 Honorees!
- Jouni Uitto Impact Award: Anna Bruckner, MD
- Spirit Award: Megan Gosselin
- Spirit Award: Rafaella “Rafi” Kopelan
- Partners in Progress Award – Approved Treatment: Chiesi Global Rare Diseases
- Partners in Progress Award: Paradigm Therapeutics
debra remains steadfast in our mission to improve the lives of individuals and families impacted by Epidermolysis Bullosa. We integrate direct-to-patient programs and services, advocacy, education, and research to foster meaningful change for those living with EB.
If you were unable to attend and wish to help support our mission, please consider making a tax-deductible contribution here.
