Awareness & Advocacy Events provide opportunities to ensure that the voices of all people with EB are heard.
Thousands of advocates join together in a global effort to spread awareness on social media, raise funds to support our mission, and celebrate the inspiring individuals and families that make our EB Community.
Upcoming Events
Rare Disease Day
February 29, 2024
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare disease and their impact on patients’ lives.
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EB Awareness Week
October 25-31, 2024
National Epidermolysis Bullosa Awareness Week is a time to increase awareness of EB, promote the need for a cure, and to spur advocacy on behalf of the thousands of individuals and families living with EB in the United States.
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#GivingTuesday
December 3, 2024
#GivingTuesday is a global day of giving, fueled by the power of social media, that aims to inspire people across the globe to give back to causes and issues that matter to them.
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